World CP Register Day

PRELIMINARY PROGRAMME

“World CP Register Day – CP Registers into the future”

1 June 2016

Scientific Committee:

Kate Himmelmann
Sarah McIntyre
Gija Rackauskaite
Catherine Arnaud

 

8.00 Welcome, meeting overview Kate Himmelmann
 
8.10 New items to collect for CP registersGenetics and cerebral palsy
Communication
Eating and drinking
Neuroimaging
Chair Catherine ArnaudMaryam Oskoui
Lindsay Pennington, Daniel Virella
Guro L. Andersen
Kate Himmelmann, Sue Reid
 
9.30 Coffee break and discussion: Are there more items to include?
 
9.50 Different viewsCP/not CP, definitions and boundaries
Classification
Chair Mary Jane PlattHayley Smithers-Sheedy, Ingeborg
Krägeloh-Mann
Sarah McIntyre, Marshalyn Yeargin-Allsopp
 
11.00 Other interesting subjects
Maximum use of data
Follow-up programs and registers in coexistence
GA-specific curves from registers
Chair Sarah McIntyre
Eva Nordmark, Kate Himmelmann
Gija Rackauskaite
All
 
11.45 Light lunch and discussion: How can registers collaborate?                                 

 
 

Affiliations

Guro L. Andersen The Cerebral Palsy Register of Norway, MD PhD, Vestfold Hospital Trust, Tönsberg, Norway
 
Catherine Arnaud UMR Inserm U1027, Toulouse III University, Clinical epidemiology department, University Hospital, Toulouse, France
 
Kate Himmelmann Clinical Sciences, Department of Pediatrics, Sahlgrenska Academy, University of Gothenburg, Sweden
Ingeborg Krägeloh-Mann University Children’s Hospital, Department of Paediatric Neurology and Developmental Medicine, Tübingen, Germany
 
Sarah McIntyre Cerebral Palsy Alliance, University of Notre Dame, Darlinghurst, NSW, Australia
 
Eva Nordmark Department of Health Sciences, Division of Physiotherapy, Lund University, Lund, Sweden
 
Maryam Oskoui Departments of Pediatrics and Neurology/Neurosurgery, McGill University, Montreal, Quebec, Canada
 
Lindsay Pennington Institute of Health and Society, Newcastle University, Sir James Spence Institute, Royal Victoria Infirmary, Newcastle upon Tyne, UK
 
Mary Jane Platt Norwich Medical School, University of East Anglia, Norwich, UK
 
Gija Rackauskaite Department of Pediatrics, Aarhus University Hospital, Aarhus, Denmark
 
Sue Reid Child Development and Rehabilitation, Murdoch Childrens Research Institute, Australia
 
Hayley Smithers-Sheedy Cerebral Palsy Alliance Research Institute, Sydney, NSW, Australia
 
Daniel Virella Epidemiology and Statistics Office, Research Unit, Centro Hospitalar de Lisboa Central, Lisbon, Portugal
 
Marshalyn Yeargin-Allsopp National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA